|28 weeks gestation and his|
little life was in question
We spent weeks and weeks reading books and information on the internet while waiting for Felix to be born. I was aware that breastfeeding might be a problem so I asked the Down Syndrome Society to send me information so it might go more smoothly. We prepared ourselves for possible health issues common in babies with Down Syndrome, but also the possibility of severe disability (or even death) from his hydrocephalus (fluid on the brain). We read up on Early Intervention and Physio we could do at home so we could start immediately. We even looked into what car we would need to buy if he was going to require a wheelchair due to the damage caused by the fluid. It's a wonder our brains didn't go into overload!
|With his little feeding tube|
From then on, Felix has gone from strength to strength. There were Physio appointments and hearing tests; visits to the Paediatrician and Occupational therapy and Speech Pathology (yes, even a newborn has speech therapy). There were people calling to let us know about this service and that service which would be beneficial for him. Sometimes it got tiring for us, but Felix coped with everything beautifully.
He showed us his determination for the first time when, at 11 months old, he started what can only be described as 'freestyle' crawling. He would move his arms like you would if you were swimming freestyle and he would push with his legs until he wormed himself forward an inch at a time to reach whatever it was he wanted. Shortly after his first birthday, he learned to sit up on his own for the first time.
|Using the touch screen|
Today Nathan and I stopped what we were doing and quietly watched Felix while he was sitting on the floor looking at some of his books. We bought him some touch-and-feel books to encourage his sensory play and he was really studying them. He turned each page carefully and with great concentration rubbed his fingers over the different textures on each page before he turned to the next one. Occasionally he would sign something to himself in relation to the picture he was looking at. I could have watched him all day. Later he sat for quite a while drawing with his finger on my touch-screen phone (An Android App called 'Toddler Lock'). He drew for a while and when he had enough of that picture, he cleared the screen by sliding his finger from the top to the bottom and then started again. I can't believe how quickly he learns how to do some things. He really is an incredible little person.