|Good kicking today|
Felix went for hydrotherapy, with his Physio, today. It was probably his best session yet. He really worked hard at kicking his legs and was consistent with it for the whole session. It really tires him out so I was pleased that he pushed himself. His Physio is amazing! She comes up with all sorts of creative ways to get Felix to work his arms and his legs in the water and she knows what will keep his attention. Today, she dropped a small bucket into the water. It was attached to a rope, and Felix had to drag the rope (which was really long), as fast as he could until he could grab onto the bucket. I was surprised at how quickly he was able to do it!
|Goodbye to Luna today|
This afternoon, Felix was really flat and grizzly so I've decided to take a day off work tomorrow and keep him home from school. He seems to have an upset stomach; the usual issues, plus the addition of iron supplements. He's been waking up super early; 4.45am this morning, and is ridiculously tired. The combination of tiredness and not feeling well is making him miserable so, I think a day home in his pajamas is just what he needs!! Whoever said "People with Down syndrome are always happy" hasn't met Felix when he's tired!
|Some pajama selfies before bed.|
In the time it has taken me to write this, a certain perfect (but grumpy), little man has fallen asleep right next to me. His foot is draped across my leg and he has his head on my pillow. His mouth is hanging open, his hair desperately needs a cut, and I can see a big graze on his chin from where he fell off a swing. He looks like a such a boy! I remember watching him sleep, as a tiny baby, and getting tears in my eyes because I was so thankful that he was mine. Nothing has changed. I'm looking at him tonight, and can't imagine my life without him in it. Sweet dreams!
*All people with Down syndrome will develop Alzheimer's disease at some point in their life. Some as early as their 20's and 30's, although there have been a lot of medical breakthroughs in this field in recent years. Hopefully, in Felix's lifetime, a cure will be found. In the meantime, we will try anything we can to try and slow the process.