|This face always makes me smile|
Felix only weighs 9.1kg (20.06lbs), which isn't very much at all for a 29 month old. When you are wearing that 9kgs around your neck, it becomes quite heavy and, when that 9kgs is also hanging onto your hair for dear life, your head feels like it might dislodge and fall off. I sometimes feel tempted to shave my head just so Felix doesn't have anything to hang on to. Is Felix clingy like this, because he has Down Syndrome? No, I don't think so. I think it just proves that he is like a lot of other children, showing a particularly shy or fearful side of his personality. However, his sensitivity to squeals and screams is most likely due to his narrower than usual ear canals, making certain sounds appear higher in pitch to him; therefore unpleasant. He has got a bit better with squealing etc, but still finds the noise of a baby screaming, or really shrill noises, hard to bear.
There were other frustrations today regarding Felix's therapy. Being a country town, our facilities are quite limited at times and staffing can be minimal, or even non-existent. We really want the best for Felix, especially during his formative years when he has such a huge capacity for learning. I sometimes feel like we're beating our heads against a brick wall to try and get appointments to check on his progress. Usually, I don't let it get the better of me but today I felt very frustrated and overwhelmed by it all.
|Do you mind? I'm eating!|