Felix can now successfully climb up the stairs on the playground, by holding the hand rail. He walks across the little bridge and then climbs another couple of steps to the top of a twisty slide. The slide isn't a super fast one, which suits Felix perfectly, because he is able to slide down all by himself without me holding onto him at all. It brings tears to my eyes to see him do something completely independently, just like other kids his age. The huge smile as he slides down tells me that he thinks he's pretty clever too!
Yesterday I met with a worker from Disability Australia (formerly NDIS: National Disability Insurance Scheme). She was here for 2 1/2 hours. I had to answer a lot of questions about Felix's needs as far as mobility, development, basic care etc etc. Most of the questions required a response of 'Needs a lot of help', 'Needs some help' or 'Needs little help', as compared to other kids his age. She and I were both laughing at one point because my first instinct was to answer with 'Needs little help' when in actual fact, compared to 'typical' kids, he needs a lot of help. All of our other kids are grown up now so I have completely forgotten what is the norm for kids Felix's age. To me, Felix is just Felix and he seems to be coping just fine. It's not until I really stop and think about it that I realise I do a lot more for him than I had to do with the other kids. They were talking in sentences, fully toilet trained, dressing themselves, running and jumping. Caring for Felix has become my reality and it's really strange to have to focus for over two hours on what Felix 'can't do' rather than what he 'can' because to me, he's amazing!! Unfortunately, focussing on the negatives is necessary sometimes for him to be able to get the support he needs to give him the best future possible.
|The local playground|