tag:blogger.com,1999:blog-3220197310170144829.post822725872960840598..comments2023-08-10T10:03:47.729-07:00Comments on A Beautiful Life: Tongue Protrusion in People with Down SyndromeFelix's Mumhttp://www.blogger.com/profile/14987454969120973776noreply@blogger.comBlogger25125tag:blogger.com,1999:blog-3220197310170144829.post-64018778283450948112023-08-10T10:03:47.729-07:002023-08-10T10:03:47.729-07:00My son use to open his mouth what should I use to...My son use to open his mouth what should I use to stop him from opening his mouth when sleeping Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-9341194914213624222019-02-02T03:08:41.052-08:002019-02-02T03:08:41.052-08:00I'm glad I could helph Never lose hope. Our ki...I'm glad I could helph Never lose hope. Our kids are incredible and so capable. Expect great things!! Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-71353668063580988092019-02-02T03:06:34.467-08:002019-02-02T03:06:34.467-08:00I definitely feel like the one who was blessed 😀I definitely feel like the one who was blessed 😀Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-7720239138583499832018-07-27T11:44:02.984-07:002018-07-27T11:44:02.984-07:00Im very happy because u guys have motivated me not...Im very happy because u guys have motivated me not to lose hope on my baby and I thought it was just a small thing until I read here thanks guys for making me know why my babies tongue is always outtumisanghttps://www.blogger.com/profile/02101353913117266057noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-72922610202405954152018-04-25T22:42:56.370-07:002018-04-25T22:42:56.370-07:00This comment has been removed by a blog administrator.Socialfuelhttps://www.blogger.com/profile/03764983581853760465noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-52119739905553887902017-12-25T14:41:21.257-08:002017-12-25T14:41:21.257-08:00wow !!! to read and see all of the angels God has ...wow !!! to read and see all of the angels God has sent here...truly beautiful...God bless you all for raising God's angels xxsandyhttps://www.blogger.com/profile/00501083399748380209noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-28114154081220779292017-11-18T15:31:26.441-08:002017-11-18T15:31:26.441-08:00I work in a preschool classroom with children with...I work in a preschool classroom with children with exceptional abilities, and different diagnoses. I am also in school as an early child development major looking forward to the day in which I will be the teacher of record. Meantime, I am learning in the process gaining knowledge and experience which I utilize in the classroom with all the children who come through the door. I went into the field because of my own children. I am a mother of twins who were diagnosed with a learning disability. Though the correct diagnosis is Autism, but for one reason or another the school district didn't want to accept the diagnosis that was being given by their doctor. I believe it was due to services they would have been eligible. Consequently, here I am trying to make a difference one child at a time ever since. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-39774651425847809692017-07-30T05:08:55.265-07:002017-07-30T05:08:55.265-07:00Thank you Marnie for your beautiful message. I hav...Thank you Marnie for your beautiful message. I have not been as active on my blog as I would like to be over the past couple of years. I went back to work when Felix was in kindergarten, so I don't have the time to write like I used to.<br />Thank you for sharing your story. What you have is a gift that not everyone has. Thank you for looking beyond the disability and seeing your patients as the people they are; individuals in their own right, who have the same rights to be loved and included as everyone else. <br />My Felix is amazing. He will be 7 in a couple of months and still teaches me so much every single day. He is such a gift!Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-48029608833398022792017-07-20T13:35:53.100-07:002017-07-20T13:35:53.100-07:00I realize it has been awhile since this blog has b...I realize it has been awhile since this blog has been published and commented on and I am not sure if it is one you are still active on, but I wanted to comment anyway, in hopes you may see it. First of all, your child is adorable. What a handsome young man. I can tell he makes you proud. <br /><br />I don't have a child with Downs. I never had biological children, but do have a stepdaughter, who is now an adult. I wanted to read your article, anyway. I was interested because I used to work in a large hospital, on a neurology floor, and we used to get a lot of patients with Downs who also had seizures. I always had a special connection with these special people. One of my co-workers there said in all her years working in nursing, she had never seen anyone with the ability to get along with those individuals the way I could. When I finally quit (to go back to college and change careers), she made me promise that if I ever went back into the medical field again, I would work with people with Downs. I could make good things happen with those folks; I could get those who were severely impacted to respond--they would acknowledge my presence with smiles, laughs, eye contact, whereas they would completely ignore everyone else; one who was always severely agitated and had a history of hitting and biting would smile and run and hug me each time she saw me-I got a complete behavior change each time for the positive; and they seemed to just genuinely like me. My friend once asked me how I did it and I told her that it was because of my viewpoint of them, not to be afraid of the disease, and to treat them as any other normal person because these individuals are not dumb and they know when someone truly likes them or not, and they are responding to the fact that know I truly like them. She asked me what my specific viewpoint was and I told her---there is a person inside there, now go find it. :) Anonymoushttps://www.blogger.com/profile/14234695407083265483noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-56785289440797515732017-01-12T03:32:00.641-08:002017-01-12T03:32:00.641-08:00Thank you for sharing! I'm sorry your brother ...Thank you for sharing! I'm sorry your brother is having some difficulties as he is ageing. How beautiful for him to have someone, like you, who loves him so much and cares so deeply for him. I totally agree with you... our lives are so much more enriched by having people like your brother, and my little Felix in them. Much love xFelix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-9118428020200383752017-01-11T17:34:41.101-08:002017-01-11T17:34:41.101-08:00Thank you! Yes, people with Down syndrome seem to ...Thank you! Yes, people with Down syndrome seem to have a gentleness about them and an intuition for the way others are feeling, which is quite incredible! I hope to keep updating (hopefully more regularly) about Felix as he grows. Thank you for your message!Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-42400130704951127862017-01-11T17:31:37.195-08:002017-01-11T17:31:37.195-08:00I'm so excited that you are going out of your ...I'm so excited that you are going out of your way to be educated about people with Down syndrome. You are right...people with DS are amazing! Thank you for being someone who is working towards making the world a place of acceptance and equality for those with disabilities. As a parent, it warms my heart!Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-83060546754352792212017-01-11T17:27:52.215-08:002017-01-11T17:27:52.215-08:00I'm sorry I'm only just seeing this messag...I'm sorry I'm only just seeing this message now. I have been so busy, my blog has taken a back seat lately. Congratulations on your new little guy...he will bring you so much joy!! Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-68408621300293709652016-09-22T19:11:56.138-07:002016-09-22T19:11:56.138-07:00Thanks Jenna, your Felix is adorable. I don't ...Thanks Jenna, your Felix is adorable. I don't have a child with DS, but the people I've met over the years with DS have been some of the sweetest souls I've ever met. You answered my questions beautifully. I'd love to see updates on Felix as he grows if you intend to share that with your blog. God bless your family, ChrissyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-53127162043926316832016-09-10T08:22:02.372-07:002016-09-10T08:22:02.372-07:00my little brother who i cared for as he was #7 n i...my little brother who i cared for as he was #7 n i #6 in family and now at 52 with our parents gone i am again caring for 24/7, he outlived and overcame every obstacle the medical folks could offer my folks as best case scenarios - i often look at him and even in his advanced age with complications the look of complete "trust" is what i perceive most folks are attracted to with ds children through to adulthood, if they are part of the family as my mother ensured, the ds becomes transparent and the challenges diminish to nothing more than daily routines. as my brother ages it becomes brutally apparent the aging process targets him more than i, as of four years ago he could write/read common words and do simple math along with sports, soccer, basketball, those days have passed, my only advice to anyone would be take time to enjoy the extra needs of those with special needs - its stops time, slows your pace, you become more loving as an individual as you give what you get, unconditional smiles, hugs, love, handshakes, thank you's and so very much more, its all in the facial expressions, pure love... good lord bless all that come to know and care for them, we are better for knowing them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-40883035101328682412016-08-28T17:27:36.703-07:002016-08-28T17:27:36.703-07:00Felix is beautiful! I don't have a child with ...Felix is beautiful! I don't have a child with DS but recently started watching the new show called Born This Way to learn. & am amazed at how smart & "normal" the awesome people with DS are on the show. They have wonderful parents also. Anonymoushttps://www.blogger.com/profile/07530243401716579481noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-57521683041055089652016-07-15T12:25:17.989-07:002016-07-15T12:25:17.989-07:00My son is 5 months and I was wondering if this was...My son is 5 months and I was wondering if this was a trait.... thx so much for sharing your very cute son with me.Hamilton County, Ohio Lawyerhttps://www.blogger.com/profile/03742501518390254667noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-38661916505277033712016-03-19T22:37:45.013-07:002016-03-19T22:37:45.013-07:00Thank you Jenna. As you can see, it has been a whi...Thank you Jenna. As you can see, it has been a while since I've been on my blog so I didn't see this message until now. I'm hoping to start back up soon. I'm glad you've enjoyed reading. I love sharing about my little guy's life :)Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-60417393061759350902015-06-12T00:11:53.255-07:002015-06-12T00:11:53.255-07:00This is a beautiful blog. I don't have a child...This is a beautiful blog. I don't have a child with DS, but I read every word. Just love it. Thanks.dotjennahttps://www.blogger.com/profile/12476981215479729444noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-62613699632081000162014-07-19T18:33:25.830-07:002014-07-19T18:33:25.830-07:00Thank you! People with DS can never be underestima...Thank you! People with DS can never be underestimated, that's for sure!! Felix has amazed us with his desire to learn! He really is an inspirational little guy! Glad you've had the pleasure of working with someone with DS :)Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-56300682239598494152014-07-18T08:24:00.107-07:002014-07-18T08:24:00.107-07:00Seeing Felix's picture brought back memories o...Seeing Felix's picture brought back memories of one of my students with DS. He is a cutie pie. People with DS are very smart, and like his picture says "did you know I've got way more abilities than disabilities" THAT IS SO TRUE! Mom, keep up the good work. They are a joy to be around. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-52323550104708285822013-10-24T04:10:15.243-07:002013-10-24T04:10:15.243-07:00Only just noticed this comment...sorry for the lat...Only just noticed this comment...sorry for the late reply! Thank you so much...we think he's gorgeous!! Definitely lights up every day! XFelix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-25871704980267416102013-10-01T17:34:53.503-07:002013-10-01T17:34:53.503-07:00Felix is so freaking adorable!!! (:Felix is so freaking adorable!!! (:Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-32966280342715677572012-08-23T02:07:53.350-07:002012-08-23T02:07:53.350-07:00Thank you! It's great to hear from parents of ...Thank you! It's great to hear from parents of older kids and hear about your experiences and advice. Your son sounds like an incredible young man. I look forward to watching Felix grown and learn. He fills every day with so much happiness! Felix's Mumhttps://www.blogger.com/profile/14987454969120973776noreply@blogger.comtag:blogger.com,1999:blog-3220197310170144829.post-48335198510032433982012-08-22T18:26:30.097-07:002012-08-22T18:26:30.097-07:00Very good information and such a sweetie! Our son ...Very good information and such a sweetie! Our son is 18 with DS. Shortly after he was born the mom of another young man with DS visited me in the hospital. The best advice she gave me was to gently tap his tongue and he will pull it back. Doing this small reminder from infancy has benefited him greatly. Just like any other muscle you have to use it or you lose it. So just that small reminder helped him so much. But in saying that, every child is different. I am just glad that someone passed this along to us because it worked wonders.<br />Our son constantly amazes me every day, what a joy he is to have in our lives.Anonymousnoreply@blogger.com